Eight months later, I was still telling myself it was nothing — ignoring how tired I felt and the weight I was losing. Linda, Hodgkin Lymphoma Survivor. Through my involvement with LRF as a Diplomat and through their wonderful platforms, I can share my story and help other young adults who are going through exactly what I went through. Andrea Lehman connected me with the local chapter of the Leukemia & Lymphoma Society, where I was able to apply for and receive a stipend for extra expenses during my treatment. There are many different kinds of lymphoma, and many different symptoms are possible, as a result. Lymphoma For Montgomery County Controller Diane Morgan, becoming a financial donor to Fox Chase Cancer Center was about much more than just writing a check. We did a full biopsy of a lymph node under my neck. Oregon Health & Science University is dedicated to improving the health and quality of life for all Oregonians through excellence, innovation and leadership in health care, education and research. Home > Cancer Stories > Leukemia. In my case, my story … Learning I had cancer was a surreal out-of-body experience. Lymphoma Stories Lisa’s Fight Like a Girl Story (Myasthenia Gravis, Lupus, Cancer) August 28, 2015 Lupus Stories, Lymphoma Stories, Myasthenia Gravis Stories, Thyroid Cancer Stories 4. I will always remember coming up the stairs to see my husband, wondering what to say to him. So, I figured it was probably time to get that checked out. gcse.async = true; I was 24 when I learned I was going to have to drop everything and start making a documentary about what it was like to have cancer. gcse.src = 'https://cse.google.com/cse.js?cx=' + cx; ... We continued to volunteer our time as adult … Today, I have my own success story to share. Learn about eligibility and appointments for COVID-19 vaccines. Eventually, I was able to ignore the pain in favor of getting to spend hours poring over footage and editing my story together. It wasn’t exactly the subject matter I’d always dreamed of tackling — but there it was. I’d been in treatment for about a month and a half before I got the call from the OHSU Adolescent and Young Adult Oncology Program support group, inviting me to come to a meeting, and it was perfect timing. Lymphoma is cancer of the lymphocytes, which are white blood cells that primarily exist in the body's lymphatic system, but are also present in blood and other body tissues. Some of the most common first symptoms of Hodgkin’s lymphoma can include: Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area. As people out in the world, we don’t always remember to view our lives that way — but we really should. Alison shares her daughter’s story of fighting Non-Hodgkin Lymphoma, and offers advice to parents supporting their own child through cancer. Here we will discuss NHL in adults… Stories of Hope is LRF’s ongoing effort to give those affected by lymphoma a voice. Nina, Diffuse Large B-Cell Lymphoma Survivor. As a part of September’s National Hodgkin’s Lymphoma Awareness Month, we are sharing the story of Asia Cutforth, an education intern at the Cancer Support Community. When I was diagnosed, I think it was a no-brainer that I would go to the OHSU Knight Cancer Institute. They end.” He said my cancer had a good chance of being cured. It really reaffirmed for me how important that process was for coping with trauma. Some typical symptoms of lymphoma in adults … I saw a lot of people in that writing group who benefited from being able to translate their experiences into stories that could be shared with others, like I was doing with my videos. January 7, 2012 at 11:40 pm. Non-… Prior to my cancer diagnosis, I never realized how resilient or strong I was.”, “I never had any doubt that I would not overcome this disease and fight it through to the end.”, "This experience has taught me that you never know how strong you are until being strong is the only choice you have. CLL is the most common leukemia in adults. After surgery, I had chemotherapy every two weeks. Non Hodgkin’s Lymphoma Stories Symptoms, Diagnosis, Treatment. Share Your Story of Hope. When you’re 23, you don’t think of cancer as a possibility. It was, however, not an easy transition moving back into my parents’ house in Tigard after spending my early twenties living on my own in LA. The OHSU infusion staff were totally dedicated — most of them had worked with cancer patients for years. I was driving to work when my family doctor called. From the kind, talented staff in convenient locations to the financial support we received, we were given the best of everything. Indolent Treatment Survey results: Follicular | Marginal Zone. I have enjoyed being a part of the LRF’s Erase Lymphoma initiative, which is focused on adolescents and young adults. I had been living in Los Angeles for the past three years, pursuing a career as a writer for television. The process was easy, and the help we got meant so much. On December 15, 2010, it was determined that I did, in fact, have non-Hodgkin follicular lymphoma. var gcse = document.createElement('script'); (HealthDay)—The Burkitt lymphoma (BL) International Prognostic Index (BL-IPI) provides robust discrimination of survival and can be used for prognostication, according to a … I had never felt … Fighting lymphoma is a long and difficult journey with many ups and downs. Radcliff told me to hang in there: “We want to make sure we get rid of this the first time,” she said. Hodgkin's lymphoma (formerly called Hodgkin's disease) 2. ", "I am grateful for the opportunity to help others and be a part of LRF. Non-Hodgkin lymphoma (sometimes called NHL, or just lymphoma) is a cancer that starts in cells called lymphocytes, which are part of the body’s immune system. Jeff, Diffuse Large B-Cell Lymphoma Survivor. Use the drop down filter to find the most relevant stories for you. And not a small one. I was not totally crazy, I had cancer." My name is Lisa Douthit. There are many many success stories with Hodgkin’s Lymphoma. ... I’d been in treatment for about a month and a half before I got the call from the OHSU Adolescent and Young Adult … Like a lot of people my age, I wasn’t particularly diligent about taking care of my health. Toward the end of chemo, I started doing short rides, and joined a program that helped cancer patients recover their fitness. I was always under the impression you could only have mono once in your life. Some people are the gift. You have to be the one doing everything you can to make sure you are getting the absolute best treatment possible. I’m an avid cyclist, and I said, “Whatever you do, I’ve got to get back on the bike.”. This block is broken or missing. Each year, nearly 70,000 adolescents and young adults (AYA) are diagnosed with cancer; and lymphoma, the most common type of blood cancer, accounts for nearly 1-in-5 cancer diagnoses among young people. The main subtypes are: 1. NHL is the seventh most common cancer in US adults. Stay informed with news, alerts and other resources. PATIENT STORIES Providing hope, inspiration and sometimes invaluable lessons. The relief of being offered free counseling services and a support group was tremendous. Leukemia is a broad term for cancers of the blood cells, most often occurring in adults … (function() { They encouraged me and gave me hope that I would get through it. Fever and chills. The advice I would give anyone with cancer is this: Find a creative outlet. ", "The day I rang the bell after receiving a clean bill of health made me feel like a butterfly that had finally broken out of her cocoon to take flight. People also say life imitates art. Dr. Sheppard and my OHSU cancer team got me back on the bike and gave me my life back. Chronic lymphocytic leukemia (CLL) is a form of cancer that affects the blood — specifically a type of white blood cells called lymphocytes — and bone marrow. I was diagnosed with follicular lymphoma in 2011. Lymphoma may look differently in children than it does in adults. Some people give gifts. In December 2012, however, I was back home with my family in Oregon and finally got around to seeing a doctor about some neck and chest pain I’d been experiencing. Armed with a consumer-level DSLR, my iPod camera, and “too many tumor sites to do radiation on,” I started filming the ins and outs of my everyday experiences as a young person with cancer. 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